Monday, April 4, 2011

I started crying in the results meeting for Holden's assessment with OT, PT, speech therapy, and the school counselor...along with two other people who were somewhat official but I don't know their exact roles. Or names.

As it turns out there is nothing wrong with my dear son per say. Apparently they seem to think his lack of sleeping for three years straight is directly related to my inability to parent. Of course they beat around the bush more thoroughly by telling me that he is well above his age in speech, motor development and is a very sociable child.

Yes. I knew that, thanks.

They went on to tell me there is nothing they can do to help me with his hyperactivity and that perhaps I should seek a pediatric counselor. Or perhaps,
"Go with him to counseling and they can teach you how to deal with him."

"Have you tried a regular schedule? Music at night? Covering the windows? His babysitter says he doesn't have a problem with bright lights at her house...He seems to only have these problems with you."

Yes. Because I am his mother and I am around him all the time. I am not making these things up and spending hours having you people come into my house for fun. It is out of desperation.

So as I am crying during the meeting the school counselor says,

"You seem overwhelmed."

You think? Seems like we're back at square one.

Maybe if I play lullabye music at night...

4 comments:

Natalie said...

Oh gosh, Kara hang in there!! And remember, that even though these people are "experts" you know more about your child than any "professional" will ever know!! My mom would tell you to keep going if you're not satisfied with the answers you're getting....I think she had me into 5+ different doctors when I was 3 and started throwing major tantrums....they all that I was a terrible kid and she didn't know how to parent, they suggested counseling, parenting classes etc.....several doctors appointments later they figured out I had a blocked urethra (sp?) and constant bladder infections - 2 surgeries later it was fixed and the tantrums were over! Sorry, that's a lot of info (maybe TMI!) to tell you to hang in there!!

Kara said...

Thank you! That does make me feel better and it's not TMI...Remember I write a blog so nothing is TMI :)

Stefanie said...

Here is what I think (even though you didn't ask!!!). At minimum one more evaluation and by a "heavy hitter." I suggest the Monroe Meyer Institute through UNMC here in Omaha. http://www.unmc.edu/mmi/ I have worked with families and children with this disorder in the past and I know that they had a very difficult time getting diagnoses and care, but did have success with the specialty trained professionals at MMI. I think it is very much worth a shot to get their professional opinion. See what they say and go from there.

In the mean time hang in there and keep doing everything you are already doing to be loving, consistent, and firm. You have so many irons on the fire between this, school and work and moving! Holy Cow. You have my permission to cry buckets whenever you need to! Just one of those things would send me back to my friends at Immanuel :)
Love You!
Stef

Kara said...

Thank you Stef! I am going to research that today. Do I need a referral from my MD?